Advice For Loved Ones And Caregivers

Orig Source www.michaeljfox.org | Re-Post Careprodx 6/23/2016 - 

Diagnosis of Parkinson's disease has a ripple effect, radiating from an individual to his or her family and friends. When hearing of a loved one’s diagnosis, many questions may come to mind. How will this impact our relationship, our future — my life?

Building A Care Partnership

Sharing in your loved one's journey with Parkinson's disease (PD), means integrating the diagnosis together into your lives, adapting your routine and supporting him or her as the disease progresses — essentially, establishing a care partnership. This can sometimes be challenging; from learning about the disease and how best to help your loved one, to remembering to also care for yourself. There are steps you can take to help adjust to your new role as a care partner while maintaining a healthy and supportive relationship with your loved one.

We asked caregivers in our community for their advice to provide a roadmap for filling this role.

How can I help manage my loved one’s care?

How will Parkinson’s affect my relationship?

How can I care for myself?

How Can I Help Manage My Loved One's Care?

Become an integral part of your loved one’s experience with Parkinson's by offering to help share the responsibilities associated with the disease including doctor appointments, therapy sessions, medication administration, household duties or any activity that’s more difficult to perform because of Parkinson's disease. People with Parkinson’s will desire different levels of assistance and some wish to maintain as much independence as possible. You won't know if a person wants help unless you ask but then respect their response. Communication about these issues is key to understanding how best to help your loved one.

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